Tuesday, October 29, 2013

Perfect

This past Saturday, our twins celebrated their B'nai Mitzvahs. You probably know the phrases "Bar Mitzvah" and Bat Mitzvah." When there are two or more such celebrations, the plural is "B'nai." It marks the time in a Jewish child's life when they become responsible for following the rules as an adult. Technically, this happens automatically when a boy reaches age 13 or a girl age 12 according to the Hebrew calendar.

Explaining the Hebrew calendar is a topic for another day, or another website. Suffice it to say that it differs from the calendar in your iPhone and is the reason why Hanukah begins on Thanksgiving this year, but can coincide with Christmas in other years.

In the US, most Jewish families make an event out of the Bar Mitzvah. The child often learns to read and chant a passage from the Torah (Old Testament) in Hebrew, and may lead other aspects of a service - usually on the Sabbath. Family and friends are invited to the service, and it's common to have some sort of celebration, ranging from a simple lunch after the service, to something that rivals a high-end wedding.

OK, so that sets the scene. It's a big deal, for the kids and the rest of the family. The date was set over a year ago, and there's no moving it. In my darkest days last summer, I sometimes worried, "what if I can't be there?" Even if I were there, what if I were feeling crappy? So imagine me, every time in the last year or so upon the start of a new chemo routine, trying to project, "is October 26th following a chemo week or an off week?" As it turns out, I was due for chemo last week. Dr Z and I had talked about this many times, and until two weeks prior to the 26th, he had always said we could just shift the schedule by a week.

But suddenly, on Wednesday the 16th, Dr Z, brought up the idea that perhaps we'd do 2/3 of my normal routine, presumably lessening the side effects, but keeping on schedule. He was concerned because the last time I'd had a break from chemo the cancer had progressed. I accepted the possibility on the surface, but I was really quite scared.

A chemo treatment, any chemo treatment, is going to make you feel "off" to some extent, and of course could be much worse than that. The last thing I wanted on this very special day for my twins was to not be able to fully enjoy it. I've come to learn that feeling joy is all but impossible for me in the days following a treatment. I also didn't want Marcie and others to be worrying about me rather than focussing on the amazing job the kids were doing with their responsibilities.

So last Wednesday, I showed up at Dr Z's with no computer to entertain me, no lunch, and wearing a  shirt that would make accessing my port difficult. I prepared myself to fight with Dr Z. "You show me exactly how many more months I'm going to live if I do chemo today instead of a week from now" was to be my opening and closing argument.  I imagined delivering that line and strolling out of the exam room, leaving Dr Z, scratching his head.

But I didn't have to. "Your counts look good, let's just wait until next week," he said as he squatted onto the wheelie-stool they always have in exam rooms. We talked for quite a while about the kids preparations, who was coming in for the event, etc. It was at that moment, at 9:50 a.m. on October 23rd, that I knew a perfect weekend was possible.

On Saturday morning, the congregation began to fill, first with the "regulars" and soon after with our family and friends. With two classes worth of the twins' friends invited, the place was more crowded than on a typical Bar/Bat Mitzvah day. My daughter was up first, leading the service for removing the Torah scroll from the Ark. I handed the Torah to my son, a symbolic passing of the torch, if you will.

They each read a potion of that week's reading, as did my older son, their uncle, their teacher, and our Rabbi. When you read from the Torah, there's always somebody standing next to you to correct any mistakes. With all due respect, I couldn't help but chuckle once I realized that the only person who needed a correction was the Rabbi. Granted, he hadn't studied his assigned reading for a year like my kids had, but still. Funny.

We had all 3 grandparents, my sister, Marcie's aunt, several cousins, and some of our close friends involved in the service as well. It was wonderful to share that part of the experience with each of them.

The kids each gave speeches about the Torah portion they had read. My daughter put a tear in nearly every eye when she applied the lesson from the story to our family's lives. Her point was that when something bad happens, you can't ignore it, but you can't dwell on it either. "My dad has cancer," she said, "and he doesn't always feel good. But we make the best of it, like if my dad needs to nap, one of us will go upstairs and lay with him. Or if he doesn't feel like paying outside, we'll have a family poker night instead."

So many people came up to me after the service and remarked that they had never seen kids tackle so much of the service, and never with as much confidence as our twins. I couldn't have agreed more.

That evening, we had a party for the kids' friends plus our out-of town guests and in-town family. There's a cool venue in a nearby conference center that has a 6-lane bowling alley, pool tables, a Wii, and a lounge area well suited for adults to gather for conversation. The night was great. The kids were all well behaved, having a great time. And I was able to catch up with many of our friends and family.

I was feeling remarkably well for a guy 3 years into his cancer treatment. My voice was back to normal, my color was good, and I could feel joy. So much joy.

It was, indeed, perfect.

Thursday, October 3, 2013

Hey Jealousy

First some good news in case you're not a Facebook pal 'o mine. I have been feeling much better this week, especially now that I'm more than a week removed from my return to chemo. My energy has returned, breathing is almost normal, and anyone wanting to make an accurate drawing of me can now use something other than "Ghost White" from the Crayola box to color me in.

All of this led me to don the gear this morning and to go for a...walk. It was 1.29 miles at an 18:01 pace. Sure, that's a far cry from the good ole days, when an 8:00 mile was a warm up and races were run at a mid 6:00 pace. No, not in high school. Actual data from the 2000's backs up my story.

Yes, I have the logs of every run I've done in the last 15 years, maybe more. Why? Because that's what Runners do. Joggers don't, and that's OK. Runners bought fancy watches to track distance and pace long before every phone sold had the ability to do the same via any number of apps. We keep up with how many miles we've run on each pair of shoes because we know that our favorite model is only good for x miles (300 in the case of the Asics Gel Kayano  line I've been wearing since about 1998.) We don't just go for a run - we have a plan: long, slow distance today, short run tomorrow, intervals at the track next Tuesday. We try to run something called negative splits, which are as painful as they sound, but for different reasons. We quietly sneak back into our houses after a 90 minute workout so as not to awaken our sleeping brood. We fly across the country so we can spend 24 hours running 200 miles down mountains and up hills as a part of a relay team.

As I've touched on many times before, I am a Runner.

At least I was. Today, as I walked back from Lakeside High, it hit me. A runner I didn't recognize was moving at a very decent clip down the hill on Briarcliff Road. I'd guess it was a 7:00 to 7:15 pace. As he passed, I began to wonder, "will I ever run like that again?" Perhaps, but it's far more likely that when I do get back to running, it won't look much like that at all. Running the Boston Marathon? It's hard to imagine I could qualify for the world's greatest race, let alone endure what would likely end up being a 6 hour torture test. Years ago, my friend PCF offered me a sponsor's exemption - maybe I should've taken her up on it.


So, yes, I'm a bit envious of dude-in-the-white-shirt, extending his stride in an attempt to let the hill do the work for him. Quick aside - as my pal B-Mock taught me in Oregon years ago, quick turnover, not a long stride, is the key to downhill running. White shirt - he's a runner. I hope he realizes that it's a gift to be able to push yourself to generate that runner's high.

Now before you start shaking your head and thinking I'm depressed by all of this, I assure you, I'm not. I'm resetting expectations so that I can have the joy of meeting or beating them one day. Maybe a 30 minute 5k in 2014 is an attainable goal. Maybe it will just be a 2 mile run without stopping. Who knows? My definition of "Runner" needs to evolve, to exclude pace and distance, and to focus instead on effort, accomplishment, camaraderie, and all the other intangibles on which we runners depend.