Tuesday, January 14, 2014

Myles Update, Monday night 1/13/14

Wow.  Just wow.  I am stunned by the incredible reaction we've received from my post last night about Myles.  We are overwhelmed by the kind thoughts, funny stories, love, and of course, food.  Thanks to you all.

Total was wonderfully uneventful.  Myles was more awake and chatty than he was over the weekend. His head CTs remained stable, so tonight he was moved out of ICU to a regular room.  While this is good news for obvious reasons, the move was bittersweet for the kids and I.  The care Myles has received in the Neuro ICU was outstanding.  It is a lovely, warm environment where families and friends are encouraged to spend time with the patient.  Each ICU room has a "studio" off the patient's room with chairs that turn into beds and a table and chairs.  It's a comfortable space where the kids and I could hang out, do homework, watch movies, and just a few feet from Myles, but not crammed up against his bed constantly saying "are you comfortable, are you ok?" (not that I would ever do that, of course). It's good for the patient and their families and I'm certain helps patients recover faster when their loved ones can be comfortably nearby.  The ICU doctors, nurses, and staff were warm and encouraging and made us all smile and laugh.

So while we're sorry to leave that hotel-like womb, we're encouraged Myles is stable enough to no longer require constant monitoring.  His face was cast today for a hockey-like mask for his whole brian radiation which is scheduled to begin Tuesday (too bad no one took a picture of that).  Myles also had a procedure to insert a filter to catch any potential blood clots headed to his lungs since he can no longer be on blood thinners due to the brain bleeds.

Lest any of his regular blog readers think that recent events have changed Myles, when the doctor explained the filter to Myles, and asked if he understood the procedure, Myles responded, "So basically, you're giving me an IUD for blood clots?"  The staff burst out laughing and have passed that comment around to each other all day.

Thanks to all for your love and support, especially to Myles's amazing best friends since childhood who practically fought each other to spend the night with Myles in his new room, allowing me sleep at home with the kids.  And as I told one of them yesterday, "don't give up on Myles yet - he likes to beat the odds!"

Sleep well all,
Marcie


1 comment:

  1. Marcie, Thank you for the update(s) and tell Myles we are giving you an A+ on carrying on his sense of humor, whether from his lips to your ears and your fingers retype or just in general your remarks! HUMOR is the BEST WAY! God has a sense of humor too, hence the "IUD for blood clots" he helped a human invent! lol. Prayers are continuing as always, just stronger and harder at this time of unknowing! Y'all are amazing! P.S. Malia and Bella (our grand daughters) are still singing their nicknames that Myles gave them at the office a couple of weeks ago....hope that makes him smile BIG! Love and God Bless! Sandy and David Pate

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